Carer Burnout – February Musings

It is probably an opportune time to talk about the very real ongoing pressures that carers and families face every day.

There is a relentlessness of daily routines, therapies, school refusals, health practitioner refusals and ongoing meltdowns. Let’s face it, not many in the everyday community have any idea what a day looks like for many who care for anyone with complex needs. They might have empathy on the surface but that is where it ends. Often, we are also barraged by completing forms, forms for Centrelink, forms for NDIS and other government departments especially when your child is becoming a young adult – without the ability to make these decisions for themselves.

Then the ongoing s***show that is NDIS, whereby the community and media is constantly disparaging it for overspending, and then the resulting unjustified cuts to participants budgets leading many to bow out of the system altogether that was principally designed to help people with disability lead a more dignified and safer life. Somehow putting extreme pressure on parents to provide yet more reports from therapists or even worse, get a re-diagnosis because what was gold standard 5-10 years ago has been replaced and it no longer fits their tick box system.

Pressures on carers are at an all-time high and many have little to no supports outside of this system of NDIS providers as all previous groups and supports disappeared when NDIS took over.

For me personally, I have reached out to Carers SA which is based in Adelaide however I know that the Carer Gateway https://www.carergateway.gov.au/ can link you with services in your own cities https://www.carergateway.gov.au/about-us/local-service-provider. I now belong to a peer group, which is designed to support carers in a small group setting, a social group which is an outing with other carers, an opportunity to get out and about and there is also 1-1 counselling. The counselling only encompasses 6 sessions, but it might be a circuit breaker for some who need 1-1 support outside of a group setting. These services are free of charge which makes it a little different to the Medicare supported psychology sessions which can have a significant gap which many can’t afford. Carer supported groups and counselling can make the isolation and stress a little easier to bear, as you are surrounded by people who ‘get it’ and are non-judging of your circumstances.

Please reach out to the Carer Gateway if you think you could benefit, I know it helped me and it might help you too.

School Refusal

Should we force a child to go to school?

In short, no. Working together with your child and addressing the reasons they don’t want to go to school should be the priority. It is important that they feel safe and that their well-being is important to you.

It is recommended that a dialogue is opened with the child. Questions should be asked so you can get to the core reason that school refusal is taking place.

Possible questions:

  • If you could change one thing about your school, what would it be? 
  • Is there anyone bothering you at school?
  • How can I help you with school?
  • Are you worried about anything at school? 
  • How are your friendships at school going? 
  • Is anything worrying you in general?
  • Is there anything you wish your teachers knew?
  • Is there anything you wish I knew?

Strategies for dealing with school refusal:

  • Stay calm – This leaves space for your child to come to you in a calm way themselves.
  • Use positive language – For example, instead of ‘are you going to get up and go to school today?’ try ‘what shall we do after school today?’.
  • Debrief daily – Open the lines of communication for your chid to share what might be bothering them.

School refusal can be very complex:

  • Get professional guidance – starting with school staff. Speak to the class teacher, school counsellor, student services so you can work together as a team to help your child overcome their anxiety.
  • Speak to your doctor/paediatrician and get the support of a psychologist or counsellor who may also help to unlock why your child is not attending school and help address the problem of getting them back to school with their well-being in mind.